Associate Director, Patient Advocacy

Company: uniQure N.V.
Location: Lexington
Posted on: October 29, 2025

Job Description:

At uniQure, we are delivering on the promise of gene therapy and delivering hope for patients facing urgent unmet medical needs. Every role in our organization carries profound purpose; whether youre in research, operations, access, or support, your contributions impact patients. Were seeking passionate professionals who thrive in high-stakes environments, uphold rigorous quality standards, and share our relentless commitment to transforming the lives of patients. Join us in making the impossible possible, where your expertise becomes a catalyst for life-changing treatments. The Associate Director, US Patient Advocacy is an integral part of uniQure’s commitment to build strong relationships and effective partnerships with patient non-profit organizations and communities, and to promote a patient-focused corporate culture. The primary focus of this role will be responsible for cultivating positive relationships with patient communities, advocacy groups, and individual patients, to better understand their needs, experiences, and challenges that inform business strategy. The role will focus on awareness, trust and collaboration with patient communities to shape patient initiatives that mobilize and empower the patient community and those who care for them to seek the best care. The role will lead collaborations with patient advocacy groups on a national level and regional level for the Southeast and Mid-Atlantic regions. Key result areas (major duties, accountabilities, and responsibilities) • Lead participation in Patient Organization events, workshops, and conferences to elevate awareness and champion patient community engagement. • Build and maintain trusted and strategic long-term relationships with patient organizations and communities. • Developing patient-facing educational materials, booths and any ancillary exhibit needs. • Identify the right patient organizations to drive strategic collaborations and partnerships that help educate and mobilize patients to seek optimal care and elevate the voice of the patient to inform decisionmakers in the patient treatment journey, including HCPs, policymakers and payers. • Execute integrated patient advocacy strategies aligned to critical business and corporate priorities based on deep understanding of the patient/care partner experience and unmet needs. • Coordinating objectives with other customer focused team members including MSLs, Account Managers for both HCPs and Payers and Case Managers. • Developing a patient advocacy field strategy that is informed by the advocacy community and aligns with uniQure’s business needs. • Champion the patient perspective and deliver strategic insights to senior leadership, program, and functional teams to optimize corporate and program strategy. • Monitor and evaluate performance to achieve and maintain best-in-class outcomes, while being fully compliant Qualifications & Skills • Minimum of 7 years of experience working in a patient advocacy role in the biopharmaceutical industry; preference to field experience • Bachelor’s degree in science, social science, communications or related field required. Master’s degree preferred. • Experience in rare disease patient advocacy • Proven track record in fostering collaboration and building trust with patient communities • Experience in cross-functional collaboration, including R&D, Medical Affairs, Communications, Market Access and Commercial. • An understanding of how to balance business and science needs with the needs of the patient community. • Excellent public speaking and presentation skills. • Exceptional communication skills, intuition, social intelligence, flexibility and creativity to excel in a constantly changing environment; a proven ability to collaborate effectively; a sense of ethics; and most importantly, a passion for patients and research. • Fluent in written and spoken English • Demonstrated ability to achieve results in a matrixed organization • Knowledge of the legal, regulatory, compliance, and ethical regulations and guidelines impacting patient advocacy in the biopharmaceutical industry • Must be able to organize, prioritize, and work effectively in a constantly changing environment • Travel 40%

Keywords: uniQure N.V., Lexington , Associate Director, Patient Advocacy, Customer Service & Call Center , Lexington, Kentucky